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	<title>Detritus</title>
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	<link>http://www.ragandboneshop.net/detritus</link>
	<description>The Rag &#38; Bone Shop Photoblog</description>
	<pubDate>Sun, 05 Sep 2010 05:34:35 +0000</pubDate>
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		<title>August</title>
		<link>http://www.ragandboneshop.net/detritus/?p=824</link>
		<comments>http://www.ragandboneshop.net/detritus/?p=824#comments</comments>
		<pubDate>Sat, 04 Sep 2010 03:27:35 +0000</pubDate>
		<dc:creator>Wayne</dc:creator>
		
		<category><![CDATA[black &amp; white]]></category>

		<category><![CDATA[family]]></category>

		<guid isPermaLink="false">http://www.ragandboneshop.net/detritus/?p=824</guid>
		<description><![CDATA[I thought it might be good to let some people know, who may not already, what&#8217;s been going on in our family for the last several weeks, now that we understand it better ourselves.
Mason, we&#8217;ve learned, has a condition called Benign Rolandic Epilepsy, though his case is in several ways atypical—that is to say, more [...]]]></description>
			<content:encoded><![CDATA[<p><img class="aligncenter size-full wp-image-825" src="http://www.ragandboneshop.net/detritus/wp-content/uploads/2010/09/mason1.jpg" alt="" width="500" height="400" />I thought it might be good to let some people know, who may not already, what&#8217;s been going on in our family for the last several weeks, now that we understand it better ourselves.</p>
<p>Mason, we&#8217;ve learned, has a condition called <a href="http://professionals.epilepsy.com/page/syndromes_benign.html">Benign Rolandic Epilepsy</a>, though his case is in several ways atypical—that is to say, more severe but not malignant.  In early August he had an early-morning tonic-clonic (also known as &#8220;grand mal&#8221;) seizure that lasted about eight minutes—probably longer, since we slept through the beginning of it.  What followed was predictably terrifying: I stammered my way through the 911 call while Nicole held Mason and talked to him—and then he stopped breathing, and everything thereafter seems, in memory, panicked and absurd.  Oddly, Nicole carried him to the bathroom.  Oddly, I kept going up and down the stairs, looking out the door for the ambulance, then checking to see whether he&#8217;d started breathing again—which he soon did.  Oddly, when the ambulance carried him away, I expected to find him back inside, still asleep.</p>
<p>Of the hospital visit that day, I&#8217;ll only say that the nurses and doctors in the emergency room were kind, and a number of tests ruled out any brain abnormalities, and he stayed overnight for observation, where more kind nurses and doctors checked in on him.  I felt rather useless, guilty for having not responded better in the moment of crisis.</p>
<p>The neurologist ordered an MRI, and in the weeks between his first episode and the MRI appointment, Mason experienced more seizures—one tonic-clonic, several partial.  The MRI, when he finally had it, looked good, which was a relief, but the seizures were still occurring, and their pattern was unusual, so this week Mason was given a 48-hour at-home EEG, which is what you see in the photo above: many electrodes on his head, some on his chest, all feeding into wires that run beneath his mesh cap and into a backpack where a machine recorded his brain activity.  I pretended, when Nicole brought him home from the neurologist&#8217;s office, that he was outfitted for space exploration, and Mason and Eleanor and I made a game of going from room to room, unholstering weapons and firing upon hostile aliens—and this was a necessary game to play, at least at first, because the alternative was to dwell on what the apparatus of the EEG, as visible as his brain&#8217;s electric pulses were invisible, might reveal.</p>
<p>The first day of the EEG was uneventful, but last night Mason had a partial seizure; and this morning he had a third tonic-clonic seizure, ten minutes long, followed by several hours of nausea and lethargy.  What can I say about these episodes?  By now Nicole and I know how to check each other&#8217;s responses; we communicate calmly, almost telepathically, which redeems the clumsiness of that early August day when this all started.  The seizures themselves are bad, but I think the aftermath is worse: he&#8217;s weak, frustrated by the weakness, too claustrophobic to be held by both of his parents at once, afraid to be alone.  Sometimes he remembers what happened; most of the time he doesn&#8217;t.  This morning, Nicole and I knew, even before the afternoon&#8217;s consultation, that whatever had been happening to Mason wouldn&#8217;t be anomalous: this is part of life in our family now, and will be for a while.</p>
<p>Mason&#8217;s neurologist told us this afternoon that the EEG indicates Benign Rolandic Epilepsy, with the qualification that Mason&#8217;s seizures are more varied, intense, and frequent than most children with BRE.  He&#8217;s likely to outgrow it in his teens, but will have to be managed medically until then.  His first dose of medication was a few hours ago.  We&#8217;ll be watching to see if the common side effects show up—mainly, a ten-to-twenty percent chance of behavioral changes: aggression, grumpiness, drowsiness.  A vitamin supplement is supposed to mitigate the possibility of behavior change.</p>
<p>These events don&#8217;t tally into narrative—which is to say, this is just life.  People become unhealthy, they develop conditions, they manage and recover.  Or not.  All told, epilepsy, and especially his kind of epilepsy, is something with which one can live.  Meanwhile, I admire Mason&#8217;s way of handling his own fragility. He never cried before a CAT scan or MRI, didn&#8217;t flinch at the IV needle, never complained about the wires on his head, even when it was obvious that they itched.  He is better composed than his father.  His is a good way to keep going.</p>
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		<item>
		<title>Fewer Hair Accoutrements</title>
		<link>http://www.ragandboneshop.net/detritus/?p=819</link>
		<comments>http://www.ragandboneshop.net/detritus/?p=819#comments</comments>
		<pubDate>Tue, 24 Aug 2010 16:57:39 +0000</pubDate>
		<dc:creator>Wayne</dc:creator>
		
		<category><![CDATA[black &amp; white]]></category>

		<category><![CDATA[family]]></category>

		<guid isPermaLink="false">http://www.ragandboneshop.net/detritus/?p=819</guid>
		<description><![CDATA[She needs fewer hair accoutrements now that her bangs have grown out.  I sort of miss the days of her shorter hair, but that&#8217;s not what she wants.
]]></description>
			<content:encoded><![CDATA[<p><img src="http://www.ragandboneshop.net/detritus/wp-content/uploads/2010/08/nora-blog.jpg" alt="" title="" width="500" height="372" class="aligncenter size-full wp-image-818" />She needs <a href="http://www.ragandboneshop.net/detritus/?p=766">fewer hair accoutrements</a> now that her bangs have grown out.  I sort of miss the days of her <a href="http://www.ragandboneshop.net/detritus/?p=262">shorter hair</a>, but that&#8217;s not what she wants.</p>
]]></content:encoded>
			<wfw:commentRss>http://www.ragandboneshop.net/detritus/?feed=rss2&amp;p=819</wfw:commentRss>
		</item>
		<item>
		<title>Bass Pond</title>
		<link>http://www.ragandboneshop.net/detritus/?p=810</link>
		<comments>http://www.ragandboneshop.net/detritus/?p=810#comments</comments>
		<pubDate>Mon, 23 Aug 2010 14:41:02 +0000</pubDate>
		<dc:creator>Wayne</dc:creator>
		
		<category><![CDATA[color]]></category>

		<category><![CDATA[family]]></category>

		<category><![CDATA[nature]]></category>

		<guid isPermaLink="false">http://www.ragandboneshop.net/detritus/?p=810</guid>
		<description><![CDATA[School starts in one week.  I&#8217;m going to miss our lazy summer days here.  (Here, Eleanor plays in the sand, and on one of the docks Mason and Maddie try to catch fish with a net.  The foot belongs to Nicole, of course.)
]]></description>
			<content:encoded><![CDATA[<p><img class="aligncenter size-full wp-image-809" src="http://www.ragandboneshop.net/detritus/wp-content/uploads/2010/08/pond-blog.png" alt="" width="500" height="267" />School starts in one week.  I&#8217;m going to miss our lazy summer days here.  (Here, Eleanor plays in the sand, and on one of the docks Mason and Maddie try to catch fish with a net.  The foot belongs to Nicole, of course.)</p>
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		</item>
		<item>
		<title>Bee, Zinnias, Tomatoes</title>
		<link>http://www.ragandboneshop.net/detritus/?p=806</link>
		<comments>http://www.ragandboneshop.net/detritus/?p=806#comments</comments>
		<pubDate>Thu, 12 Aug 2010 21:01:27 +0000</pubDate>
		<dc:creator>Wayne</dc:creator>
		
		<category><![CDATA[color]]></category>

		<category><![CDATA[nature]]></category>

		<guid isPermaLink="false">http://www.ragandboneshop.net/detritus/?p=806</guid>
		<description><![CDATA[This bee spent at least an hour in the garden today.
]]></description>
			<content:encoded><![CDATA[<p><img class="aligncenter size-full wp-image-805" src="http://www.ragandboneshop.net/detritus/wp-content/uploads/2010/08/bee1.jpg" alt="" width="500" height="753" />This bee spent at least an hour in the garden today.</p>
]]></content:encoded>
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		</item>
		<item>
		<title>Do Not Mess With This Pirate</title>
		<link>http://www.ragandboneshop.net/detritus/?p=802</link>
		<comments>http://www.ragandboneshop.net/detritus/?p=802#comments</comments>
		<pubDate>Sun, 08 Aug 2010 22:11:08 +0000</pubDate>
		<dc:creator>Wayne</dc:creator>
		
		<category><![CDATA[color]]></category>

		<category><![CDATA[family]]></category>

		<guid isPermaLink="false">http://www.ragandboneshop.net/detritus/?p=802</guid>
		<description><![CDATA[Seriously, don&#8217;t.
]]></description>
			<content:encoded><![CDATA[<p><img src="http://www.ragandboneshop.net/detritus/wp-content/uploads/2010/08/pirate-mason2.jpg" alt="" title="" width="500" height="332" class="aligncenter size-full wp-image-800" />Seriously, don&#8217;t.</p>
]]></content:encoded>
			<wfw:commentRss>http://www.ragandboneshop.net/detritus/?feed=rss2&amp;p=802</wfw:commentRss>
		</item>
		<item>
		<title>Missile Mouse</title>
		<link>http://www.ragandboneshop.net/detritus/?p=795</link>
		<comments>http://www.ragandboneshop.net/detritus/?p=795#comments</comments>
		<pubDate>Mon, 26 Jul 2010 03:57:12 +0000</pubDate>
		<dc:creator>Wayne</dc:creator>
		
		<category><![CDATA[books]]></category>

		<category><![CDATA[color]]></category>

		<category><![CDATA[family]]></category>

		<guid isPermaLink="false">http://www.ragandboneshop.net/detritus/?p=795</guid>
		<description><![CDATA[After a busy morning, Mason likes to sit in his chair and attentively follow the adventures of Missile Mouse.  I welcome the quiet.
]]></description>
			<content:encoded><![CDATA[<p><img src="http://www.ragandboneshop.net/detritus/wp-content/uploads/2010/07/misslemouse1.jpg" alt="" title="" width="500" height="360" class="aligncenter size-full wp-image-794" />After a busy morning, Mason likes to sit in his chair and attentively follow the adventures of Missile Mouse.  I welcome the quiet.</p>
]]></content:encoded>
			<wfw:commentRss>http://www.ragandboneshop.net/detritus/?feed=rss2&amp;p=795</wfw:commentRss>
		</item>
		<item>
		<title>Wheat</title>
		<link>http://www.ragandboneshop.net/detritus/?p=791</link>
		<comments>http://www.ragandboneshop.net/detritus/?p=791#comments</comments>
		<pubDate>Fri, 02 Jul 2010 02:40:55 +0000</pubDate>
		<dc:creator>Wayne</dc:creator>
		
		<category><![CDATA[color]]></category>

		<category><![CDATA[nature]]></category>

		<guid isPermaLink="false">http://www.ragandboneshop.net/detritus/?p=791</guid>
		<description><![CDATA[A field at Old Sturbridge Village.
]]></description>
			<content:encoded><![CDATA[<p><img src="http://www.ragandboneshop.net/detritus/wp-content/uploads/2010/07/wheat.jpg" alt="" title="" width="500" height="332" class="aligncenter size-full wp-image-792" />A field at Old Sturbridge Village.</p>
]]></content:encoded>
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		<item>
		<title>At the Pond</title>
		<link>http://www.ragandboneshop.net/detritus/?p=789</link>
		<comments>http://www.ragandboneshop.net/detritus/?p=789#comments</comments>
		<pubDate>Tue, 29 Jun 2010 22:51:48 +0000</pubDate>
		<dc:creator>Wayne</dc:creator>
		
		<category><![CDATA[Uncategorized]]></category>

		<guid isPermaLink="false">http://www.ragandboneshop.net/detritus/?p=789</guid>
		<description><![CDATA[Maddie and the pond fish check each other out.  It was late morning, we were the only ones around, and the water was very still.
]]></description>
			<content:encoded><![CDATA[<p><img src="http://www.ragandboneshop.net/detritus/wp-content/uploads/2010/06/pond-fish.jpg" alt="" title="" width="500" height="400" class="aligncenter size-full wp-image-788" />Maddie and the pond fish check each other out.  It was late morning, we were the only ones around, and the water was very still.</p>
]]></content:encoded>
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		</item>
		<item>
		<title>Peas in Pods</title>
		<link>http://www.ragandboneshop.net/detritus/?p=783</link>
		<comments>http://www.ragandboneshop.net/detritus/?p=783#comments</comments>
		<pubDate>Fri, 25 Jun 2010 16:51:06 +0000</pubDate>
		<dc:creator>Wayne</dc:creator>
		
		<category><![CDATA[color]]></category>

		<category><![CDATA[family]]></category>

		<category><![CDATA[food]]></category>

		<guid isPermaLink="false">http://www.ragandboneshop.net/detritus/?p=783</guid>
		<description><![CDATA[Mason and his friend Noah picked the last of our peas from the garden.  Noah lives on an &#8220;urban farm,&#8221; and gave instructions about the proper way to eat the peas, pods and all, but Mason could not be persuaded to try them.
]]></description>
			<content:encoded><![CDATA[<p><img class="aligncenter size-full wp-image-782" src="http://www.ragandboneshop.net/detritus/wp-content/uploads/2010/06/045-blog2.jpg" alt="" width="500" height="625" />Mason and his friend Noah picked the last of our peas from the garden.  Noah lives on an &#8220;urban farm,&#8221; and gave instructions about the proper way to eat the peas, pods and all, but Mason could not be persuaded to try them.</p>
]]></content:encoded>
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		<item>
		<title>Millipede Knob</title>
		<link>http://www.ragandboneshop.net/detritus/?p=775</link>
		<comments>http://www.ragandboneshop.net/detritus/?p=775#comments</comments>
		<pubDate>Sat, 29 May 2010 23:59:50 +0000</pubDate>
		<dc:creator>Wayne</dc:creator>
		
		<category><![CDATA[color]]></category>

		<category><![CDATA[nature]]></category>

		<guid isPermaLink="false">http://www.ragandboneshop.net/detritus/?p=775</guid>
		<description><![CDATA[The family hiked to Rattlesnake Knob today—part of the Mount Norwottuck range in Mount Holyoke Range State Park. The children wondered why our destination was named for a snake that doesn&#8217;t live around here.  Later, after spotting three of these creatures at the summit, we decided a more apt name would be Mellipede Knob.
Maddie [...]]]></description>
			<content:encoded><![CDATA[<p><img src="http://www.ragandboneshop.net/detritus/wp-content/uploads/2010/05/six-blog2.jpg" alt="" title="" width="500" height="750" class="aligncenter size-full wp-image-777" />The family hiked to Rattlesnake Knob today—part of the Mount Norwottuck range in <a href="http://www.mass.gov/dcr/parks/trails/Holyoke.gif">Mount Holyoke Range State Park</a>. The children wondered why our destination was named for a snake that doesn&#8217;t live around here.  Later, after spotting three of these creatures at the summit, we decided a more apt name would be Mellipede Knob.</p>
<p>Maddie tried to get this one to climb onto a stick, but it curled up and refused to move.</p>
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